CureDuchenne:
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Saturday, October 25, 2008 | |||||||||||||||
6:30pm to midnight | |||||||||||||||
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Where: | |||||||||||||||
Balboa Bay Club, 1221 West Coast Hwy, Newport Beach, CA 92663 | |||||||||||||||
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Talent Line Up: | |||||||||||||||
Jerry Velasco and the Sentimentalists and Teen Sensations Runway MMC | |||||||||||||||
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Live Auction Items: | |||||||||||||||
Hollywood "Mystery" Package | |||||||||||||||
(parents with teens WON'T want to miss this one) | |||||||||||||||
Super Bowl Tickets/ NFL Party Package | |||||||||||||||
Las Vegas Meet and Greet Danny Gans Package | |||||||||||||||
$10,000 Montage Spa Package | |||||||||||||||
Jimmy Kimmel Green Room Package | |||||||||||||||
Napa Wine Country Weekend by Private Jet | |||||||||||||||
and many more | |||||||||||||||
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Press Invitation | |||||||||||||||
Media Representatives are invited as Guests of CureDuchenne | |||||||||||||||
R.S.V.P to debra@cureduchenne.org or 1-949-721-4063 | |||||||||||||||
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Local charity, CureDuchenne muscular dystrophy, will host its first annual "Chance for a Lifetime Gala" on Saturday, October 25, 2008. The Orange County community is invited to join the fun at the Balboa Bay Club, 1221 West Coast Hwy, Newport Beach, CA 92663, from 6:30pm to midnight. There will be live music throughout the night by the popular Jerry Velasco and the Sentimentalists and a special performance by hot new teen sensations, Runway MMC. Tickets will be $175 per person, and include dinner, dancing, and silent and live auction items. Try your hand at our exciting black jack tournament. Reservations can be made online at www.cureduchenne.org. Proceeds will target severely under-funded research projects that could bring possible therapies, and or a cure, in time to save THIS generation of boys with Duchenne muscular dystrophy.
"As we face the future, we realize tackling this disorder head on is the only way we'll ever find a cure," said Debra Miller, founder of CureDuchenne and parent of a Duchenne boy. "Research for Duchenne muscular dystrophy is seriously under-funded. Even though this is the most lethal genetic disorder of young boys worldwide, very few people know about it. Funding for Duchenne research is nowhere near that of other, less lethal, childhood disorders. We want to put the pressure on to find a cure in time to save our boys." CureDuchenne has made significant progress in moving leading edge science out of the labs and into human clinical trials.
CureDuchenne Muscular Dystrophy aggressively finds and funds promising Duchenne specific research with a sense of urgency. We want to be out of the Duchenne business within the next 10 years because a cure's been found. Money makes a difference, and we'd like to challenge the Orange County community to focus their charitable dollars to this disease. Several families with Duchenne boys are joining us event night and are working diligently to make this event a success. Thanks to their support and efforts, and the businesses and individuals who generously support them, we will expedite a cure.
About Duchenne Muscular Dystrophy (DMD)
One in every 3,500 boys worldwide is afflicted with Duchenne muscular dystrophy. They will be in wheelchairs by 12 and, historically, most have not survived their teenage years. Duchenne knows no boundaries and crosses all cultures and races. It can happen in any family. There currently is no cure, but for the first time, there are promising therapies on the horizon.
About CureDuchenne
CureDuchenne is a non-profit organization founded in 2003 by Debra and Paul Miller, parents of a Duchenne boy. CureDuchenne's Vision is its name"¦to cure Duchenne muscular dystrophy. CureDuchenne aggressively seeks the most promising, leading edge research breakthroughs and expedites them to the clinical trial process. The ultimate goal...give the boys that have Duchenne now a chance to live a normal life by expediting the availability of treatments/therapies and or a cure that can give quality of life to Duchenne boys, much like insulin does for diabetics.
For more information on Duchenne Muscular Dystrophy and CureDuchenne, 3334 E. Coast Hwy. #157, Corona del Mar, CA 92625, visit our website at www.cureduchenne.org or call (949) 721-4063.